Hampshire and the Isle of Wight branch

Since 1994 our aim is to provide local families affected by Huntington's with a cuppa, chat and company. People can talk about what is happening to their families knowing that the others there know what they are going through.

The local Specialist Huntington's Disease Adviser, Eve Payler, also attends meetings when she can.

Before Covid, we held monthly carers meetings and bi-monthly branch meetings which have been replaced by on-line Zoom meetings. We also have social events such as BBQs, pub meals, picnics, and boat and theatre trips some of which are subsidised. We also organise subsidised events to get young people together such as activity days and spa days.

Our past secretary, the late Hugh Marriott wrote “The Selfish Pigs Guide to Caring” recommended for all carers.

Whatever your connection to the disease, whether at risk, undergoing testing, tested, diagnosed positive or negative, symptomatic, carer, family member, friend or professional you are welcome. Often people feel very alone with this disease and the aim of the group is to meet others in similar situations, feel listened to and supported. The group is focused on the needs of the members and between us we have a wealth of experience to share. No one needs to feel alone.

We are able to offer welfare grants for household items, school uniforms, starting university, also grants to enable families to ‘make memories’ e.g. by having a special day out. Please get in touch to find out more.

We also have a Facebook page.

Where we meet

Covid has prohibited indoor meetings, so at present we meet on Zoom with some outdoor social events. 

When we meet

Last Saturday of every other month from 2pm.

Key contact

Michael Foot (hon sec)

01962 714487

[email protected]

Specialist Huntington's Adviser

Eve Payler

02380 612 218

[email protected]