Huntington's Disease Awareness Week

What you can do

Huntington’s Disease Awareness Week brings our community together to unite against the havoc Huntington’s can cause.

People often tell us that living with Huntington’s disease feels like living under a shadow. Help us bring Huntington's out of the shadows by getting involved in Huntington’s Disease Awareness Week.

We've put together an information pack to help you find out more about how you could take part.

Download pack


Shine a light on Huntington's 

Because Huntington’s isn’t very well known, it’s still a very misunderstood disease. This #HDAwarenessWeek, we’re sharing the facts to shine a light on Huntington’s and bring it out of the shadows.

Three things you need to know about Huntington's 

Donate a candle to shine a light on Huntington's

Get involved this #HDAwarenessWeek by lighting an online candle to shine a light on Huntington's disease. By donating a digital candle you can help bring Huntington's disease out of the shadows.

You can leave a message to show why you're supporting Huntington's Disease Awareness Week - and remember to share with your friends, family and followers. 

Make your donation to shine a light on Huntington's 

Get involved

#LightItUp4HD at home

Light up your home to raise awareness of Huntington's

#LightItUp4HD landmark

Join the global Huntington's community by lighting up a local landmark

Shine a light online

Help raise awareness on social media and bring Huntington's out of the shadows

Plan an awareness event

Help raise funds and educate people about Huntington's