Digital Volunteer Fundraiser Awards 2021

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The Digital Volunteer Awards 2021, who will you vote for?

This year’s Volunteer Awards Ceremony will be taking place online on Friday 11 June 2021, 3 pm-5 pm. The date is fast approaching which means that it’s time to meet our final nominees and cast your vote.

This year, we will be celebrating our brilliant fundraisers who have taken on amazing challenges in 2019 and 2020 to help support our work. There will be three categories from which you can choose your winners and we ask that you vote for one person or group in each of the categories.

Read their testimonies below.



Help celebrate the amazing support of our volunteer fundraisers by voting for a fundraiser in this year’s Huntington’s Disease Association Digital Volunteer Fundraiser Awards.

There are four categories in this year's awards:

1 - Young Fundraiser of the Year (under 18 years old)

Vote for the young person who has been inspirational in their fundraising for the Huntington's Disease Association in 2019 and 2020.

2 - Fundraiser of the Year (aged 18 +)

Vote for your fundraiser of the year - the person who has tirelessly fundraised for the Huntington's Disease Association in 2019 and 2020. 

3 - Fundraising Group of the Year (2 fundraisers or more)

This might be a group of friends or work colleagues who went above and beyond to raise funds for the Huntington's Disease Association in 2019 and 2020. Vote for the people who came together to inspire their friends and colleagues to join them to raise funds for our work.

Young Fundraiser of the Year (under 18 years old)

Scroll down to read about the nominees for the Young Fundraiser of the Year award. 


Jess Webb

In October 2019, serial fundraiser Jess (aged 14) organised a dinner, dance, raffle and auction. The event raised a staggering £6,500.

She contacted many businesses that supported her with supplying donations for the raffle and auction. Rolls Royce supplied a car, a hotel supplied a suite with dinner and breakfast, adventure experiences, spa day and golf lessons just to name a few.

She put the event on at The Langstone Quays Resort Hotel a venue with harbour views. She had 100 guests sat for a three-course meal followed by the raffle and auction, the evening finished with a live singer ‘Amba Tremain’ who had guests on their feet dancing till midnight.

Lewis Bird

After finding out that his grandad had been diagnosed with Huntington's disease, Lewis (aged 11) wrote a letter to his headteacher asking if he could raise money at school for the Huntington’s Disease Association. They held a non-school uniform day and a book sale raising a brilliant £436.90. 

Luke, Jack and Lucy Browning

Luke (aged 17) Jack (aged 12) and Lucy (aged 11) raised money by entering their local Morecambe carnival dressed up as Bill ‘N’ Ben and weed.

They decorated a three-wheeler trike, taking many hours, and included a large daisy to honour the sudden passing of a family friend’s daughter.

Luke, Jack and Lucy took hours making origami stars to hand out to children along the carnival route whilst adults were given a leaflet explaining how Huntington’s affects people.

The children live with their dad who is affected by Huntington’s disease and wanted people to understand more about the disease and show everyone how proud they are of him.

Manchester United Girls' Regional Talent Club, Under 11 Squad

The members of the Manchester United Girls' Regional Talent Club, Under 11 Squad took part in a challenge to cover 15 miles each over two weeks. The aim was to collectively run, cycle or walk 200 miles, which is the distance between each of their homes. In the end, the team smashed their target and covered an incredible 462 miles!

The girls wanted to take on this challenge and raise funds for their much-loved coach and Head of Girls' Football Development, Emma Fletcher, who has Huntington’s Disease. They raised the wonderful amount of £7,350.  

Fundraiser of the Year (aged 18 +)

Scroll down to read about the nominees for the Fundraiser of the Year award. 


Claire Lestoquoit


Claire ran 100km a month for a year throughout 2020.

Claire had lost contact with her best friend and never understood why. After her friend's death, she discovered she had been affected by Huntington’s disease. This had resulted in her friend isolating herself from the world.

Feeling an immense sense of guilt she decided to take on this massive challenge to raise funds and awareness.

Her plan had been to arrange group runs with colleagues, however, due to COVID-19, this was not possible. Claire had to manage her own solo runs and used social media to share her progress and gain support.


David Nicol

Being symptomatic with Huntington’s hasn’t held David back. In 2019, he completed the Virgin Money London Marathon for the second time. During the race, he suffered a knee injury but carried on till the end. 

Since first taking part in 2016 he has supported and encouraged other #TeamHDA runners throughout their own training for the event.

David is an active member of the Berkshire support group, always offering his time to speak to anyone who needs a listening ear.

Emily Knight

In 2019, Emily completed The Parish walk on the Isle of Man. An event where you have to walk 85 miles in less than 24 hours. The route takes you around the 17 parishes of the Island and you have a time limit to reach each church and clock in. Emily completed it in 22 hours 21 minutes.

Helen Owen

In 2019, Helen decided to complete 50 tasks in 50 weeks to celebrate her 50th birthday.

The challenges she chose tested both her mental and physical strength. The challenges ranged from holding a tarantula to soaring through the air on a zip wire. It was vitally important to Helen that she created unique memories with her husband who has Huntington's disease.

Her efforts raised £2,140.50 and through regular updates using different media; Facebook, Huntington's articles and email updates she showed that nothing is impossible, motivating and inspiring others whilst raising awareness.

Tony Mee

During the 2020 lockdown, Tony wrote a book on football coaching and as a result, has donated over £5,000 to the charity.

Whilst caring for his wife, who has Huntington’s, he has taken part in other fundraising activities during 2020 which has helped to raise this amazing amount.

Fundraising Group of the Year (2 fundraisers or more)

Scroll down to read about the nominees for the Fundraising Group of the Year.


Josh and James Beasley-Hall

Josh sadly lost his mother to Huntington's when he was ten years old. Josh then turned eighteen and tested positive for the disease himself. Since then, he has been a dedicated fundraiser and has worked tirelessly to support the Huntington's Disease Association. 

In 2019, Josh and his partner James took part in a five-day trek of the Grand Canyon. Josh and James were so happy that they were able to take part in such an amazing adventure whilst at the same time supporting people affected by Huntington’s disease. 

It was a tough and physically demanding trek especially with the heat they had to endure. Knowing they were raising money to help people and families affected by Huntington's kept them motivated throughout.

It truly was a trip to remember as the pair got married on their final night in the US before flying back to England.

Kayleigh, Danielle, Lisa and Carol

During 2019 Kayleigh, Danielle, Lisa and Carol hosted three brilliant events; a horse racing night and raffle, a clairvoyant evening and a quiz night. 

In October 2020, Lisa bravely took part in a skydive to help raise funds. The group had other events planned in 2020 but due to COVID-19, they were unable to go ahead.

The group have raised the brilliant amount of £5,736.10 for the charity.

Run for Huntington’s

After the diagnosis of their friend Matt in 2018, this group of six were prompted to think about ways they could help. After much thought and discussion, they settled on a mammoth 275-mile relay run, from Matt’s hometown of Colchester to Matt’s ‘spiritual home’ of Newcastle-upon-Tyne, where he went to university and home to his beloved Newcastle United.

Funding the challenge themselves and using their holiday entitlement, the run took a year to organise. Each of them committed to a gruelling training regime and helped with the meticulous planning to ensure its success.

The run took six days to complete during September 2019 and they raised over £12,000!

Now cast your vote!

Voting now closed

We’d like to thank all our brilliant supporters for everything they do to fundraise for us.

If you have any questions regarding the voting process please get in touch with our fundraising team at [email protected].

Thank you to everyone who has supported the Huntington's Disease Association, we wouldn’t be here without you.