About Family Matters

Family Matters is a new national awareness campaign that has been organised by the Huntington’s Disease Alliance UK and Ireland, which consists of The Huntington's Disease Association, Scottish Huntington's Association, Huntington's Disease Association of Ireland and Huntington's Disease Association Northern Ireland. We have teamed up with project funders, Roche, to raise nationwide awareness around Huntington's disease. 

The alliance alongside our handpicked PR company, M & F Health will work hard throughout May to raise awareness in a variety of ways, including - 

  • The Living History project
  • A large social media campaign
  • Celebrity ambassadors
  • The creation of videos that feature interviews with Huntington's disease families
  • Surveys to gain important data from the Huntington's community
  • Conversations with decision-makers
  • Launch of a campaign website
  • Raising awareness by sharing information with the press

We hope that this coming together in the name of Huntington's disease awareness will be a success. You can get involved in Family Matters by sharing your story to the Living History project.