Family Weekend

Family Weekend


Radisson Blu Hotel East Midlands Airport,
Pegasus Business Park,
Herald Way,
DE74 2TZ


Friday 18th October 2019


Sunday 20th October 2019

What’s on?


Join us at our annual family weekend at the Radisson Blu East Midlands hotel.


We will be joined by speakers with extensive knowledge of care, support and research including the following key note speakers on Saturday:

  • Dr Ed Wild from University College London on Huntington’s research progress and current trials.
  • Cath Stanley, Chief Executive of the Huntington’s Disease Association, on the work of our charity followed by our annual general meeting* for voting members.
  • Josh Beasley on his Huntington’s disease testing journey 


We know that people need information about Huntington’s at different times depending on the stage of their Huntington’s journey. With that in mind, we will be running optional smaller, interactive workshops on both Saturday and Sunday.

Workshop subjects will include genetic testing, managing mental health and related behaviour changes, practical tips on diet and nutrition, planning for end of life, relaxation techniques and the importance of physical activity and physiotherapy.**

There will be opportunity on Sunday for any branch and support group members in attendance to discuss the progress of the current branch and support group model review and put forward their ideas and suggestions.


Is this weekend for you?


This weekend is for everyone affected by Huntington’s disease, whether family, friend, individual or professional, to come together to understand more about the disease.
It’s for the whole family - with an off-site trip and support activities on Saturday arranged by our Specialist Youth Engagement team for children and young people (up to 16 years) and a film morning on Sunday. Our Youth workers will be on hand to supervise activities and be a source of support and advice.


Why should I come?


Feeling isolated and alone in living with such a complex disease is a feeling known to many with Huntington’s in their family – but when we come together we’re a support network.

The weekend enables people to make new and lasting friendships with others who understand. We learn, we chat, enjoy delicious food and dance into the night with our themed dinner dance on Saturday – this year it’s Disney!

We would love to see you at the weekend.

For a copy of the booking form with full details of the packages available click here

To book your place online today click here


* Formal notice of the Annual General Meeting can be found at here

** Speakers and workshop subjects may be subject to change