Bristol Family Day


Bristol Family Day

Where:

Somerdale Pavilion
Tiberius Road
Keynsham
Bristol
BS31 2FF

When:

Saturday 2nd June 2018


Huntington's disease is a family disease. It has a ripple effect and everyone’s life changes. To cope effectively with Huntington's disease, have others who believe in them, and have hope and confidence so they can live productive lives, is key.

Early interventions, treatment, holistic therapies and education is vital to promote independence.

The Huntington’s Disease Association wishes to invite members of families affected by Huntington's disease and professionals wishing to know more about it, to attend our Bristol family day.

 

Event details

10.00 -10.30        

REGISTRATION AND REFRESHMENTS

 

10.30 – 10.40        

WELCOME TO THE FAMILY DAY

Heather Thomas, Chair of Bristol HD Branch

 

10.40 – 11.30        

Lauren Byrne, Clinical Research Fellow

Fighting public enemies no. 1 and no. 2’

Latest HD Research

 

11.30 – 11.45       

BREAK

 

11.45-12.30           

Dr Katy Hamana and Dr Una Jones

Working together to promote physical activity’

College of Biomedical and Life Sciences, Cardiff University

 

12.30 – 1.30        

LUNCH

 

1.30 – 2.15          

Dr Duncan McLauchlan: Clinical Lecturer and Honorary SpR in Neurology

 ‘Behavioural changes in HD’

 

WORKSHOPSTo choose 2 discussion groups on the day

(Each Group is 30 minutes long with a 15 minute break in-between)

 

2.15 –3.30            

Benefits Advice

Lisa Knowles

Personal Experiences  (families only)

Facilitated by Shirley Bignell and Charles Whaley, HDA

Communication in HD – Tips and Advice

Sophie Cottrell, Speech and Language Therapist

Tips on Behaviours:

Stanley House, Elysium Healthcare

Jo McCabe and Heidi McCarthy   

               

3.30-4.30             

TEA AND CAKE/ REFRESHMENTS, RAFFLE CLOSING REMARKS

Heather Thomas, Chair of Bristol HD Branch

 

Please return the booking form to secure your place. 

Booking form