Huntington's Disease Awareness Month

Huntington's Disease Awareness Month is upon us again! Each year the global Huntington's community unite during the month of May in a shared mission to raise awareness of this rare and little known disease.

COVID-19 social distancing measures and various building closures have unfortunately halted our annual #LightItUp4HD awareness campaign so, throughout the month of May we are asking as many people as possible to join us in 'speaking out' for Huntington's disease as part of our #SpeakOut4HD campaign. 

We will be 'speaking out' to raise awareness of the struggles many people affected by the disease face including mental health, the complexity of caring, coping and loss.

We are also running a #Pledge4HD campaign in which you can raise awareness by pledging something special throughout May. It could be to share informative Huntington's related social posts during May. Or, you can pledge to run 2 miles a day for a week to raise funds. The possibilities are endless. 

Find out more below about how you can get involved in Huntington's Disease Awareness Month 2020.

If you are affected by Huntington’s disease and need support or advice, please contact us on 0151 331 5444 or email


Get involved

Pledge your support

Speak out online

Hold a virtual awareness event

Remember a loved one

What's coming up this month?

Urgent COVID-19 appeal

COVID-19 has had a dramatic effect on all of our lives. Social distancing measures are significantly impacting our fundraising efforts and ability to help and care for those affected by Huntington’s disease.

Those who are symptomatic of Huntington's disease are considered some of the most vulnerable in society. The risk of respiratory infection means that they are high-risk and must shield themselves for at least three months. 

At the Huntington's Disease Association, we will carry on providing advice and support through our Specialist Advisory Service, informative and educational website content, supportive social channels, welfare grants and much more to anyone affected by Huntington's disease. But, we need your help to continue providing this support.

Learn more