Huntington's Disease Awareness Month - May 2019

Why Huntington's Disease Awareness Month?

Huntington's Disease Awareness Month brings our community together to unite against the havoc Huntington's can cause. Starting off at the Huntington's Society of Canada, Huntington's Disease Awareness Month and the #LightItUp4HD campaign has grown into a global recognition of the disease, helping raise awareness around the world! People often tell us that living with Huntington's disease feels like living under a shadow. Help us bring Huntington's out of the shadows by getting involved in #HDawarenessmonth this May 2019. 

How to get involved?

We have created several different methods in which you can get involved in Huntington's Disease Awareness month. A key focus will be #LightItUp4HD, a worldwide campaign in which buildings, landmarks and homes alike will be lit up in the HDA colours throughout the month of May. You can also show your support online and organise your very own Huntington's Disease Awareness Month event! Find out more about how you can get involved below.

Think carers

This year, alongside raising awesome amounts of awareness for Huntington's, we will also be focusing on the amazing work that Huntington's disease carers do. From professionals to family carers, we will be honouring all their hard work during the 13 - 19 May. If you know of a family carer who deserves to be honoured this #HDawarenessmonth take a look at our Shine A Light Online page to learn more! We will also be hosting specialist training courses and events for carers, may it be for care home staff or family carers, we have the solution.  


Get involved


Take part in this global campaign and help us light up the world to raise awareness of Huntington's

Shine a light online

Help raise awareness on social media and bring Huntington's out of the shadows

Plan an awareness event

Help raise funds and educate people about Huntington's

Spread the word about our carer support

Find out more about the training we can offer to professionals

Remember a loved one affected by Huntington's

Get involved this #HDawarenessmonth by adding a star to the sky to shine a light on Huntington's disease. By donating a digital star you can remember a loved one affected by Huntington's and help bring the disease out of the shadows.

You can leave a message to show why you're supporting Huntington's Disease Awareness Month - and remember to share with your friends, family and followers. 

Make your donation to shine a light on Huntington's here