Family voices - In conversation with Siobhan

Family voices - In conversation with Siobhan




Wednesday 07 September 2022



Hear from families across the Huntington’s disease community in this new series of talks brought to you by the Huntington’s Disease Alliance UK and Ireland. 


In this episode, we will be talking to Siobhan. Siobhan's husband has a 50% chance of developing Huntington’s disease and together, Siobhan and her husband made the decision not to find out if he carries the faulty gene.


"We don’t know, and we don’t want to know."
After much research, they decided to opt for pre-implantation diagnosis (PGD IVF). In this talk, Siobhan will share her personal experience of finding out about Huntington’s disease and her PGD journey.
The Huntington's Disease Alliance brings together Huntington's disease charities from the UK and Ireland.


Register here

About the Huntington's Disease Alliance


The Huntington’s Disease Alliance was established to promote awareness of Huntington’s disease and improve support for families across the UK and Ireland. The Alliance consists of four independent charities, Huntington's Disease Association, Scottish Huntington's Association, Huntington's Disease Association Northern Ireland and Huntington's Disease Association of Ireland. The organisations within the Alliance share the common goal of helping people who live with Huntington’s disease to achieve the best quality of life possible. Collectively, the Huntington’s Disease Alliance also strives to universally increase understanding and raise awareness of the impact of the disease on individuals and families affected.