Message Board
Blog
News
Events
Shop
Search
Donate
Toggle navigation
Huntington's disease
Getting help
Professionals
Get involved
Research
About us
Contact us
Message Board
Blog
News
Events
Shop
Donate
Donate
Huntington's disease
New to Huntington's disease?
What is Huntington's disease?
What causes Huntington's disease?
Symptoms of Huntington's disease
Genetics of Huntington's disease
Physiology of Huntington's disease
What is Juvenile Huntington's disease?
Symptoms of Juvenile Huntington's disease
Genetics of Juvenile Huntington's disease
Physiology of Juvenile Huntington's disease
Living with Huntington's disease
Anna's story
Ellis' story
Stewart’s story
Clare’s story
Margaret's story
Mark's story
Jeremy’s story
Getting help
If you're at risk
Sources of support
Genetic testing
Starting a family
Insurance and legal matters
Employment
Emotional support
Talking about being at risk
Living well
If you're showing symptoms
Sources of support
Getting the care you need
Getting financial help
Life with Huntington’s
Practical matters
Getting emotional support
Talking to people about Huntington's
Thinking about the end of life
If you're a carer
Support for carers
Managing communication difficulties
Managing challenging behaviour
Emotional support
Financial help for carers
Leisure, travel and help with costs
Practical matters
Talking to others
Approaching the end of life
If you're an older carer
Guides
Additional Resources
Where to get advice
If you have Juvenile Huntington's
Sources of support
Getting the care you need
Getting the most out of life
Getting financial help
Talking about Juvenile Huntington's
Getting emotional support
Education with Juvenile Huntington's
Becoming a young adult
Approaching the end of life
For children and young people
Help for children
Help for teenagers
Help for young adults
Help for young carers
Our youth engagement service
SHDA Service
Branches and support groups
Information resources
COVID-19 information and advice hub
Professionals
About Huntington's
Medication for Huntington’s disease
Resources for professionals
Best practice in Huntington’s disease
Best practice in Juvenile Huntington’s disease
Huntington’s disease training courses
Professional membership of the Huntington’s Disease Association
Working with patients and families
Additional Support
Financial support
HDA Quality Assured Accreditation
Get involved
Volunteering
Fundraising
Donating
Join our mailing list
Campaigning and awareness
Research
Get involved in research
Research we fund
Other research studies and resources
About us
Who we are
Meet the team
Meet the executive council
Using our logo
What we do
Specialist Huntington’s Disease Advisory Service
Membership
Magazine and newsletters
Annual report and accounts
Our vision, mission and values
Our strategy 2018 - 2022
Contact us
Message Board
News
Events
Shop
Donate
Blog
Filter by
Category
Fundraising
Volunteering
Body, Mind and Behaviour
Advice for professionals
Research
Juvenile Huntington's disease
Young people
Branches and support groups
Real life stories
Top tips
In the media
COVID-19
Dates
2020
January 2020
March 2020
April 2020
May 2020
July 2020
August 2020
September 2020
October 2020
November 2020
December 2020
2019
February 2019
March 2019
April 2019
May 2019
June 2019
July 2019
August 2019
September 2019
October 2019
November 2019
December 2019
01 Dec 2020
8 ways you can give back this #GivingTuesday
13 Nov 2020
Children in Need – Allowing us to support young people affected by Huntington’s disease
09 Nov 2020
How I took control of my Huntington’s story: by author and life coach Paula Meir
14 Oct 2020
Creepy crawly, ghostly spooooky Halloween fundraising ideas for all the family
21 Sep 2020
Interview with ‘Coming Back To You’ author, Lily Hayden, on why she chose to write about Huntington’s disease
10 Aug 2020
What to expect when visiting your loved one at a residential or care home during COVID-19
06 Jul 2020
Why raising money for Huntington’s disease is so important – A thank you to my sister, Emma
20 May 2020
How being diagnosed with a fatal disease changed my life
19 May 2020
A picnic of awareness-raising champions
15 May 2020
Advice on behaviour in Huntington’s – Interview with a care expert!
11 May 2020
Huntington’s, COVID-19 and Me – An insight into the life of a Huntington’s family
24 Apr 2020
Harley Skywalker takes on the 2.6 challenge
1
(current)
2
3
4
