Helpline:

0151 331 5444

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Help and support

Care

What is Huntington's disease?

Huntington’s disease is an illness caused by a faulty gene in your DNA (the biological ‘instructions’ you inherit which tell your cells what to do).

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Find support near you

Our team of Specialist Huntington's Disease Advisers are here to help you - they can provide information, advice and support on all aspects of Huntington's disease.

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Getting help

We are here to offer support and advice no matter what stage of Huntington's disease journey you are on. We support entire families, carers, healthcare professionals, employers and teachers.

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Support for young people

If you are a child or young person that has someone with Huntington’s disease in your family, this section is for you.

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Latest news

Odds And Socks Day

Want to host an event for Odds And Socks Day?

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Get involved in research studies - 2025

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Rare Disease Day 2025

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Upcoming events

HDYES activity day (108)

Activity day for young people in Bristol

18 February 2025, 9:15am - 3:30pm

Youth engagement service and In person

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Medication webinar

Medication and Huntington's disease

19 February 2025, 2:00pm - 3:00pm

For families and For professionals and Support

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Overview of Huntington's disease for care staff

26 February 2025, 2:00pm - 3:30pm

For professionals and Monthly events

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Support our work

Make a donation

Your donation will help us support people living with Huntington’s disease.

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£27.85 helps support our vital telephone helpline

£11.98 could pay for five booklets to help children to learn about Huntington's disease

£67.69 allows us to provide care and support groups for families with Huntington's disease

For professionals

Training

Training

Did you know that the Huntington's Disease Association offers a range of training for professionals?

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Webinars and videos

Book on to one of our live webinars or watch any of our recorded sessions.

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Professional resources

Useful leaflets and guides to help professionals understand Huntington's disease.

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Patient journey

Understand the patient journey and at what interventions are needed at different stages of the disease.

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Events for you

Lucy and Jack - Running - Consent 2023 (3)

Run for charity - event directory

Running events

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Kelly Gordon - Walking - Consent 2022

Climb Snowdon challenge

Challenges

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Jess Webb skydive -Consent

Skydive challenge

Challenges

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