HD research: Treatment & prevention
Participants needed - research into siblings with Huntington's disease
August 2009
A study is currently underway in the United Kingdom investigating the clinical features of siblings with Huntington's disease (HD). The purpose of the study is to better understand why the symptoms of HD vary in presentation and age at onset from one person to the next and if any particular symptoms cluster in families affected with HD.
We would like to interview families where at least two brothers or sisters have HD - whether already symptomatic or not yet symptomatic but have had a positive predictive test. Also, if within these families there are any siblings who have had a negative predictive test and therefore do not have HD, we would be very interested in interviewing these family members too.
Participation in this study involves a single clinical assessment lasting approximately 2 hours, arranged at a suitable time for you in your home or another place convenient for you. The assessment consists of:
- An assessment of your movements, thinking and day-to-day functional capabilities.
- An interview about any psychiatric symptoms you may have experienced.
- Two self-report questionnaires.
If you would like any further details or have any questions about the study then please contact Jenny Keylock on 0121 301 2363 or email jck543@bham.ac.uk.
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