Juvenile Huntington's Disease - events

JHD Family Weekends, 2008 and 2009

Our fourth JHD Family Weekend was held at the Calvert Trust in the Lake District from the 20th-22nd June (2008), and was as successful as previous years. The Calvert Trust has some great activities, including horse-riding, canoeing, archery and rock climbing, so there is something for everyone and for every type of weather! This year we welcomed Heather Skirton and Jim Pollard from the U.S., who spoke to the parents who came to the weekend.

Next year the weekend will be from the 12th-14th June (2009), and will be held at the Calvert Trust again. The purpose of the weekend is to give young people with HD and their families an opportunity to meet other people in a similar situation, whilst also having a great weekend full of exciting activities! The weekend is also an opportunity for families to find out more about JHD, both from other parents and professionals.

To find out more about the weekend and to book your place, please contact Helen Brewer on 01279 507656. Please don't hesitate to contact us if you have any questions about the weekend, and please book early to avoid disappointment.

JHD Study Days

We held a practical study day on Juvenile Huntington's Disease on the 16th January 2008 in central London. This study day is aimed at health and social care professionals who may be supporting a child, or children, with JHD and their families. It provided an opportunity to learn about JHD, meet with other health and social care professionals also supporting a child with JHD and their families, and to attend practical workshops on managing various aspects of JHD that were of interest or relevance to specific areas of work.

If you missed this event and would be interested in other professional study days, please visit our events page (http://www.hda.org.uk/charity/events.html) to find out about other events in your area.