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HDA: Fact sheets, booklets & forms

The HDA Fact Sheets are available online in PDF format. To download, view and print out the HDA Fact Sheets you will require a copy of Adobe Acrobat Reader on your computer. You can also obtain printed copies of these fact sheets by contacting:

Huntington's Disease Association

Neurosupport Centre, Norton Street, Liverpool, L3 8LR
Phone: 0151 298 3298
Fax: 0151 298 9440
email: info@hda.org.uk

Fact sheets about Huntington's disease

PDF General Information About Huntington's Disease and the HDA
PDF Predictive Testing for Huntington's Disease
PDF Talking to Children About Huntington's Disease
PDF Information for Teenagers
PDF Eating and Swallowing Difficulties
PDF Huntington's Disease and Diet
PDF The Importance of Dental Care
PDF Communications Skills
PDF Behavioural Problems
PDF Sexual Problems
PDF Huntington's Disease and the Law
PDF Huntington's Disease and Driving
PDF Advice on Life Assurance, Pensions, Mortgages, etc*
PDF Seating, Equipment and Adaptations
PDF Checklist for Choosing a Care Home
PDF Advance Decision to Refuse Treatment
PDF Advance Decision to Refuse Treatment Form
PDF Huntington's Disease - A Carer's Guide

* Members may find "Insurance and Genetic Tests: What you need to know" on the Association of British Insurers web site useful.

Fact sheets about Juvenile HD

PDF Challenging Behaviour in Juvenile HD
PDF A Young Person with Juvenile HD at School
PDF A Brief Guide to Juvenile HD for Children's Hospices and Palliative Care Services

Fact sheets for social and healthcare professionals

PDF Standards of Care for People Affected with HD
Aimed at social and healthcare professionals and useful for anybody caring for someone with HD

HDA membership forms

PDF HDA Membership Form
PDF HDA Professional Membership Form
PDF HDA Change of Address Form

HDA  donation & legacy forms

Word document Bankers Order Form - make your donation to the HDA go further - click here to download
PDF Gift Aid Form - if you are a UK tax payer we may claim Gift Aid on all of your donations to the HDA. We can claim an extra 28p per £1 donated from HM Revenue & Customs - click here to download
Word document Legacy Codicil Form - click here to download
Word document Legacy Estate Checklist - click here to download
Word document Legacy Giving Form - click here to download
Word document Memoriam Donations - click here to download

HDA maps

PDF HDA Branches & Support Groups
PDF HDA Regional Care Advisers

Other booklets available from the HDA

Huntington's disease in the family (1997) - A booklet for young children


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