HDA: About the Huntington's Disease Association

The Huntington's Disease Association exists to support people affected by the disease and to provide information and advice to professionals whose task it is to support Huntington's disease families. The HDA is financed through the generosity of trusts, foundations, the statutory and corporate sectors, branches of the HDA, members and friends.

HDA organisation and structure

Central Care Information, Advice and Support Service

This operates from our registered office in Liverpool and consists of paid staff and volunteers. The office is open from 9.00 am to 5.00 pm weekdays (except bank holidays). Phone Head Office on 0151 298 3298.

Regional Care Advisory Service

These consist of teams of Regional Care Advisers who:

provide information and advice to families
answer crises calls and liaise with other professional service providers
promote and develop a full range of local services
identify suitable respite and residential care facilities
liaise with local branches and self-help groups
give talks and organise seminars and training days
provide speakers for training sessions
provide workshops for service providers and users such as health, social services, nursing homes, and residential care staff teams

See our Regional Care Advisers page for more details.

Local branches and groups throughout the UK

These groups provide a local, informal setting for families and individuals to:

mix socially
offer support and advice
share experiences and ideas
form local links with professionals and other groups in their community
raise funds
organise speakers

and, above all, provide a forum to share a common purpose and reduce the feeling of isolation. See our Local Branches and Local Support Groups pages for more details.

Research programme

Our programme promotes and also funds both medical and social research. New applications from researchers are encouraged. See our Research pages for more details.

Awards

More information

To download more information about the HDA see our Fact Sheets page.

In this section

See also