Huntington's Disease Association

• Neurosupport Centre, Liverpool, L3 8LR
• Phone: 0151 298 3298
• Fax: 0151 298 9440
• info@hda.org.uk

HDA fact sheets

1. All about the Huntington's Disease Association - 32k
2. General information about Huntington's disease - 32k
3. Predictive testing for Huntington's disease - 56k
4. Talking to children about Huntington's disease - 36k
5. Information for teenagers - 32k
6. Eating and swallowing difficulties - 72k
7. Huntington's disease and diet - 548k
8. The importance of dental care - 32k
9. Communications skills - 620k
10. Behavioural problems - 52k
11. Sexual problems - 32k
12. Huntington's disease and the law - 40k
13. Huntington's disease and driving - 36k
    
    
14. Advice on life assurance, pensions, mortgages etc - 130k. Members may find "Insurance and Genetic Tests: What you need to know" on the Association of British Insurers web site useful: http://www.abi.org.uk/Display/default.asp?Menu_ID=946&Menu_All=1,946,0&Child_ID=131
    
    
15. Seating, equipment and adaptations - 48k
16. Checklist for choosing a care home - 48k
17. Advance Directive or "Living Will" - 48k

Juvenile Huntington's Disease fact sheets

1. Challenging behaviour in Juvenile HD - 148k

Social and Healthcare professionals

1. Standards Of Care For People Affected With HD - 1.9MB
   Aimed at Social and Healthcare professionals and useful for anybody caring for someone with HD

HDA membership and other forms

1. Membership - 44k
2. Professional Membership - 41k
3. Deed of Covenant Form with Bankers Order - 21k
4. Advance Directive - 50k

Other booklets available from the HDA

1. Huntington's disease in the family (1997) - A booklet for young children
2. Facing Huntington's disease - A handbook for families and friends